New data reveals that over 200,000 people in England are currently waiting for an autism assessment, marking a 25% rise in the last year and a staggering 96% increase over two years. Of these, 89.4%—around 183,200 individuals—have been waiting longer than the 13-week target set by the National Institute for Health and Care Excellence (NICE). At the current rate, the waiting list could grow to over 256,000 by this time next year, with the median waiting time already standing at 301 days.
The National Autistic Society warns that lengthy delays in accessing assessments are leaving many individuals without the crucial support they need. An autism diagnosis often serves as a gateway to appropriate help and services, yet prolonged waits are causing undue stress and anxiety, and in some cases, pushing individuals towards a mental health crisis. The organisation stresses that support should not depend solely on a formal diagnosis, but the reality is often very different.
This growing backlog highlights a system under strain. Tim Nicholls, from the National Autistic Society, described the situation as a wake-up call, urging the government to act urgently. He pointed out that a small portion of the recently allocated £22.6bn NHS budget could resolve this crisis, easing pressure on families and services alike.
Without significant investment, waiting lists are set to grow further, leaving autistic people and their families without essential support. Campaigners are calling for immediate funding to address these delays and improve the future for those affected.