The National Down Syndrome Policy Group (NDSPG) and more than 61 organisations advocating for disabled people across the UK have issued an open letter expressing serious concerns about the proposed legalisation of assisted dying. They urge MPs to approach the Terminally Ill Adults (End of Life) Bill with greater caution, ensuring a thorough and inclusive review to prevent unintended harm to vulnerable individuals, as seen in other nations where similar laws have been introduced.
The letter highlights fears that assisted dying legislation could expose individuals with Down syndrome and learning disabilities to undue pressure or coercion, particularly if they struggle to fully understand or consent to life-ending decisions. There is already a history of healthcare inequality, as demonstrated during the Covid-19 pandemic when NHS staff had to be reminded that learning disabilities should never be used as justification for issuing DNACPR (Do Not Attempt Cardiopulmonary Resuscitation) orders. Despite this, research from King’s College London in 2021 uncovered continued failures in the use of DNACPR orders for those with learning disabilities.
Campaigners also criticised the rushed nature of the consultation process, arguing that it fell short of the recommended 12-16 week period, limiting proper public engagement. They pointed out that a lack of accessible materials and adjustments excluded people with learning disabilities from fully participating in discussions on a law that directly affects them.
Rachael Ross MBE, Founding Officer of NDSPG, emphasised the need for caution, stating that while compassionate end-of-life care is essential, the proposed bill does not ensure protection for all. She warned that international evidence shows such laws inevitably expand beyond their original scope, placing the most vulnerable at risk. She stressed that the government has a responsibility to safeguard those at risk and should not proceed with legislation that carries any uncertainty regarding their safety and dignity.
