DanceSyndrome, a pioneering dance charity that creates opportunities for people with learning disabilities, has secured over £340,000 from The National Lottery Community Fund to expand its work. Founded in 2009 by Jen Blackwell, who has Down’s syndrome, along with her parents, the project was born out of Jen’s struggle to find inclusive community dance opportunities.
The organisation currently runs four weekly Everybody Dance community sessions in person, alongside five online classes, as well as offering training and performance opportunities. With the new funding, DanceSyndrome aims to extend its reach by 2030, particularly by opening up pathways for children with learning disabilities to engage in dance at all stages of life.
At the heart of its success is a co-production model. This approach sees Dance Leaders with learning disabilities work side-by-side with professional artists, shaping accessible sessions together. Jen explains that this model is crucial, as it challenges perceptions of disability and demonstrates what people can achieve with the right support. Participants have reported boosts in confidence, independence, and a stronger sense of belonging.
In 2023, the charity also launched the DS Youth Collective, which highlighted the demand for more inclusive opportunities for children and young people. Managing Director Julie Nicholson said the new funding will help deliver accessible dance activities across the North West and beyond, ensuring families can enjoy the transformative benefits of dance in their communities.


